Pickard L, Wittenberg R, Comas-Herrera A, Davies B, Darton R. Relying on informal care in the new century? Informal care for elderly people in England to 2031. Ageing Soc. 2000;20:745–72.
Article
Google Scholar
UNECE. UNECE Policy Brief on Ageing No. 22: The challenging roles of informal carers. UNECE Working Group on Ageing 2019.
OECD. Help wanted? Providing and Paying for Long-Term Care. Paris: OECD; 2011.
Federal Office for Public Health: Support for relatives providing care and nursing https://www.bag.admin.ch/bag/en/home/strategie-und-politik/politische-auftraege-und-aktionsplaene/aktionsplan-pflegende-angehoerige.html. Accessed 1 Nov 2019.
Montgomery RJ, Gonyea JG, Hooyman NR. Caregiving and the experience of subjective and objective burden. Fam Relat. 1985;34:19–26.
Article
Google Scholar
Hirst M. Caring-related inequalities in psychological distress in Britain during the 1990s. J Public Health. 2003;25:336–43.
Article
Google Scholar
Saito T, Kondo N, Shiba K, Murata C, Kondo K. Income-based inequalities in caregiving time and depressive symptoms among older family caregivers under the Japanese long-term care insurance system: a cross-sectional analysis. PLoS One. 2018;13:e0194919.
Article
PubMed
PubMed Central
CAS
Google Scholar
Wakabayashi C, Donato KM. Does caregiving increase poverty among women in later life? Evidence from the health and retirement survey. J Health Soc Behav. 2006;47:258–74.
Article
PubMed
Google Scholar
Nabors N, Seacat J, Rosenthal M. Predictors of caregiver burden following traumatic brain injury. Brain Inj. 2002;16:1039–50.
Article
PubMed
Google Scholar
Ghosh S, Choi WY, Williams A, Duggleby W, Ploeg J, Markle-Reid M, Peacock S. Burden on caregivers of adults with multiple chronic conditions: Intersectionality of age, gender, education level, employment status, and impact on social life. Canad J Aging/La Revue canadienne du vieillissement. 2019:1–12.
Pearlin L, Mullan J, Semple S, Skaff M. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist. 1990;30:583–94.
Article
CAS
PubMed
Google Scholar
Bartley M. Health inequality: an introduction to concepts, theories and methods. Cambridge: Wiley; 2016.
Kim H, Chang M, Rose K, Kim S. Predictors of caregiver burden in caregivers of individuals with dementia. J Adv Nurs. 2012;68:846–55.
Article
PubMed
Google Scholar
Vitaliano PP, Russo J, Young HM, Teri L, Maiuro RD. Predictors of burden in spouse caregivers of individuals with Alzheimer's disease. Psychol Aging. 1991;6:392.
Article
CAS
PubMed
Google Scholar
Campbell P, Wright J, Oyebode J, Job D, Crome P, Bentham P, Jones L, Lendon C. Determinants of burden in those who care for someone with dementia. Int J Geriatr Psychiatry. 2008;23:1078–85.
Article
CAS
PubMed
Google Scholar
Pot A, Deeg D, Van Dyck R. Psychological distress of caregivers: moderator effects of caregiver resources? Patient Educ Couns. 2000;41:235–40.
Article
CAS
PubMed
Google Scholar
Pinquart M, Sörensen S. Correlates of physical health of informal caregivers: a meta-analysis. J Gerontol Ser B Psychol Sci Soc Sci. 2007;62:P126–37.
Article
Google Scholar
Williams A, Sethi B, Duggleby W, Ploeg J, Markle-Reid M, Peacock S, Ghosh S. A Canadian qualitative study exploring the diversity of the experience of family caregivers of older adults with multiple chronic conditions using a social location perspective. Int J Equity Health. 2016;15:40.
Article
PubMed
PubMed Central
Google Scholar
Glaser K, Grundy E. Class, caring and disability: evidence from the British retirement survey. Ageing Soc. 2002;22:325–42.
Article
Google Scholar
Minkler M, Fuller-Thomson E, Guralnik JM. Gradient of disability across the socioeconomic spectrum in the United States. N Engl J Med. 2006;355:695–703.
Article
CAS
PubMed
Google Scholar
Reinhardt JD, Von Elm E, Fekete C, Siegrist J. Social inequalities of functioning and perceived health in Switzerland–a representative cross-sectional analysis. PloS one. 2012;7:e38782.
Article
CAS
PubMed
PubMed Central
Google Scholar
Fekete C, Siegrist J, Reinhardt JD, Brinkhof MW, Group SS. Is financial hardship associated with reduced health in disability? The case of spinal cord injury in Switzerland. PloS one. 2014;9:e90130.
Article
PubMed
PubMed Central
CAS
Google Scholar
Sacker A, Head J, Gimeno D, Bartley M. Social inequality in physical and mental health comorbidity dynamics. Psychosom Med. 2009;71:763–70.
Article
PubMed
Google Scholar
Aarts MJ, Kamphuis CB, Louwman MJ, Coebergh JWW, Mackenbach JP, van Lenthe FJ. Educational inequalities in cancer survival: a role for comorbidities and health behaviours? J Epidemiol Community Health. 2013;67:365–73.
Article
PubMed
Google Scholar
WHO. In: Bickenbach J, Officer A, Shakespeare T, von Groote P, editors. International perspectives on spional cord injury. Geneva: WHO; 2013.
Google Scholar
Scholten EW, Kieftenbelt A, Hillebregt CF, Groot S, Ketelaar M, Visser-Meily JM, Post MW. Provided support, caregiver burden and well-being in partners of persons with spinal cord injury 5 years after discharge from first inpatient rehabilitation. Spinal Cord. 2018;56:436.
Article
PubMed
Google Scholar
OECD/WHO. OECD Reviews of Health Systems. Switzerland. Geneva: OECD; 2011.
OECD. Income inequality update: income inequality remains high in the face of weak recovery. Paris: OECD COPE Centre for Opportunity and Equality; 2016.
Fekete C, Brinkhof MW, Tough H, Siegrist J. Longitudinal study of social participation and well-being among persons with spinal cord injury and their partners (pro-WELL). BMJ Open. 2017;7:e011597.
Article
PubMed
PubMed Central
Google Scholar
Brinkhof MW, Fekete C, Chamberlain JD, Post MW, Gemperli A. Swiss national community survey of functioning after spinal cord injury: protocol, characteristics of participants and determinants of non-response. J Rehabil Med. 2016;48:120–30.
Article
PubMed
Google Scholar
Fekete C, Segerer W, Gemperli A, Brinkhof MW, Group SS. Participation rates, response bias and response behaviours in the community survey of the Swiss spinal cord injury cohort study (SwiSCI). BMC Med Res Methodol. 2015;15:80.
Article
PubMed
PubMed Central
Google Scholar
UNESCO. International standard classification of education (ISCED). Paris: UNESCO; 1997.
Google Scholar
Hagenaars AK, de Vos K, Zaidi MA. Poverty statistics in the late 1980s: research based on micro-data. Luxembourg: Office for Official Publications of the European Communities; 1994.
Google Scholar
Adler N, Stewart J. The MacArthur scale of subjective social status; 2007.
Google Scholar
Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20:649–55.
Article
CAS
PubMed
Google Scholar
Bédard M, Molloy DW, Squire L, Dubois S, Lever JA, O'Donnell M. The Zarit burden interview. A new short version and screening version. Gerontologist. 2001;41:652–7.
Article
PubMed
Google Scholar
Kline P. Handbook of psychological testing. London: Routledge; 2013.
Book
Google Scholar
Schreiner AS, Morimoto T, Arai Y, Zarit S. Assessing family caregiver's mental health using a statistically derived cut-off score for the Zarit burden interview. Aging Ment Health. 2006;10:107–11.
Article
CAS
PubMed
Google Scholar
Stagg B, Larner AJ. Zarit burden interview: pragmatic study in a dedicated cognitive function clinic. Prog Neurol Psychiatry. 2015;19:23–7.
Article
Google Scholar
Reiner I, Beutel M, Skaletz C, Brahler E, Stobel-Richter Y. Validating the German version of the quality of relationship inventory: confirming the three-factor structure and report of psychometric properties. PLoS One. 2012;7:e37380.
Article
CAS
PubMed
PubMed Central
Google Scholar
Hughes ME, Waite LJ, Hawkley LC, Cacioppo JT. A short scale for measuring loneliness in large surveys results from two population-based studies. Res Aging. 2004;26:655–72.
Article
PubMed
PubMed Central
Google Scholar
Robinson-Whelen S, Taylor HB, Feltz M, Whelen M. Loneliness among people with spinal cord injury: exploring the psychometric properties of the 3-item loneliness scale. Arch Phys Med Rehabil. 2016;97:1728–34.
Article
PubMed
Google Scholar
Schwarzer R, Jerusalem M. Generalized self-efficacy scale. Meas Health Psychol User’s Portfolio Causal Contr Beliefs. 1995;1:35–7.
Google Scholar
Sangha O, Stucki G, Liang MH, Fossel AH, Katz JN. The self-administered comorbidity questionnaire: a new method to assess comorbidity for clinical and health services research. Arthritis Rheum. 2003;49:156–63.
Article
PubMed
Google Scholar
Kalpakjian CZ, Scelza WM, Forchheimer MB, Toussaint LL. Preliminary reliability and validity of a spinal cord injury secondary conditions scale. J Spinal Cord Med. 2007;30:131–9.
Article
PubMed
PubMed Central
Google Scholar
Textor J, Hardt J, Knuppel S. DAGitty: a graphical tool for analyzing causal diagrams. Epidemiology. 2011;22:745.
Article
PubMed
Google Scholar
White IR, Royston P, Wood AM. Multiple imputation using chained equations: issues and guidance for practice. Stat Med. 2011;30:377–99.
Article
PubMed
Google Scholar
Kenny DA, Kashy DA, Cook WL, Simpson J. Dyadic data analysis - methodology in the social sciences. New York: Guilford; 2006.
Google Scholar
Cook W, Kenny D. The actor–partner interdependence model: a model of bidirectional effects in developmental studies. Int J Behav Dev. 2005;29:101–9.
Article
Google Scholar
Green MJ, Popham F. Interpreting mutual adjustment for multiple indicators of socioeconomic position without committing mutual adjustment fallacies. BMC Public Health. 2019;19:10.
Article
PubMed
PubMed Central
Google Scholar
Weston R, Gore PA Jr, Chan F, Catalano D. An introduction to using structural equation models in rehabilitation psychology. Rehabil Psychol. 2008;53:340.
Article
Google Scholar
Preacher KJ, Hayes AF. Asymptotic and resampling strategies for assessing and comparing indirect effects in multiple mediator models. Behav Res Methods. 2008;40:879–91.
Article
PubMed
Google Scholar
Enders CK, Bandalos DL. The relative performance of full information maximum likelihood estimation for missing data in structural equation models. Struct Equ Modeling. 2001;8:430–57.
Article
Google Scholar
van der Heide I, Wang J, Droomers M, Spreeuwenberg P, Rademakers J, Uiters E. The relationship between health, education, and health literacy: results from the Dutch adult literacy and life skills survey. J Health Commun. 2013;18:172–84.
Article
PubMed
PubMed Central
Google Scholar
Volandes AE, Paasche-Orlow MK. Health literacy, health inequality and a just healthcare system. Am J Bioeth. 2007;7:5–10.
Article
PubMed
Google Scholar
Galobardes B, Shaw M, Lawlor DA, Lynch JW, Smith GD. Indicators of socioeconomic position (part 1). J Epidemiol Community Health. 2006;60:7–12.
Article
PubMed
PubMed Central
Google Scholar
Mandemakers JJ, Monden CW. Does education buffer the impact of disability on psychological distress? Soc Sci Med. 2010;71:288–97.
Article
PubMed
Google Scholar
Berecki-Gisolf J, Lucke J, Hockey R, Dobson A. Transitions into informal caregiving and out of paid employment of women in their 50s. Soc Sci Med. 2008;67:122–7.
Article
PubMed
Google Scholar
Robert S, House JS. SES differentials in health by age and alternative indicators of SES. J Aging Health. 1996;8:359–88.
Article
CAS
PubMed
Google Scholar
Pollack CE, Chideya S, Cubbin C, Williams B, Dekker M, Braveman P. Should health studies measure wealth?: a systematic review. Am J Prev Med. 2007;33:250–64.
Article
PubMed
Google Scholar
Hughes TB, Black BS, Albert M, Gitlin LN, Johnson DM, Lyketsos CG, Samus QM. Correlates of objective and subjective measures of caregiver burden among dementia caregivers: influence of unmet patient and caregiver dementia-related care needs. Int Psychogeriatr. 2014;26:1875–83.
Article
PubMed
PubMed Central
Google Scholar
Schulz R, Czaja SJ, Lustig A, Zdaniuk B, Martire LM, Perdomo D. Improving the quality of life of caregivers of persons with spinal cord injury: a randomized controlled trial. Rehabil Psychol. 2009;54:1.
Article
CAS
PubMed
PubMed Central
Google Scholar
Altman DG, Bland JM. Absence of evidence is not evidence of absence. Br Med J. 1995;311:485.
Article
CAS
Google Scholar