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Table 1 Basic characteristics of the pro-WELL baseline population

From: Social inequalities in the burden of care: a dyadic analysis in the caregiving partners of persons with a physical disability

 

Caregiving partners

Persons with SCI

Total [Missing values: SCI; partner]

Sociodemographic characteristics

Continuous

Mean (SD)

Mean (SD)

 Age (in years)

50.7 (10.0)

51.7 (9.4)

 Net-equivalent household income (in CHF) [17;18]

4333 (1560)

4495 (1473)

 Years of formal education [7;2]

14.0 (3.2)

13.8 (3.2)

 Subjective social position (range 0–10) [5;4]

6.0 (1.6)

5.8 (1.8)

 Duration of caregiving (in years) [7]

18.8 (11.0)

–

Categorical

n (%, 95 CI)

n (%, 95 CI)

 Female [0;0]

86 (72.9, 64.0–80.2)

36 (27.1, 19.8–35.9)

 Financial strain [5;4]

39 (34.5, 26.2–43.9)

39 (34.5, 26.2–43.9)

 Home ownership [2;7]

79 (66.4, 58.2–74.6)

81 (72.9, 63.8–80.5)

 Paid employment [0;0]

76 (53.3, 44.2–62.3)

63 (64.4, 55.2–72.6)

Lesion characteristics of the care-receiver

n (%, 95 CI)

n (%, 95 CI)

 Lesion severity [2]

 Incomplete paraplegia

–

36 (31.0, 23.2–40.1)

 Complete paraplegia

–

45 (38.8, 30.3–48.1)

 Incomplete tetraplegia

–

22 (19.0, 12.7–27.3)

 Complete tetraplegia

–

13 (11.2, 6.6–18.5)

Aetiology [3]

 Traumatic

–

97 (84.3, 76.4–90.0)

 Non-traumatic

–

18 (15.7, 10.0–23.6)

Health status

Mean (SD)

Mean (SD)

 Secondary health conditions (SCI-SCS, range 0–24) [0]

–

10.8 (5.3)

 Comorbidities (SCQ, range 0–5) [0;0]

0.8 (1.1)

0.9 (1.0)

Psychosocial resources

Mean (SD)

Mean (SD)

 Quality of relationship (QRI, range 0–24) [3;2]

20.3 (3.6)

21.0 (2.9)

 Loneliness (UCLA-SF, range 0–6) [3;2]

0.7 (1.3)

1.1 (1.5)

 Self-efficacy [3;4]

15.5 (2.4)

15.0 (2.7)

Unfulfilled support needs

n (%, 95 CI)

 

 Wish for more support in caregiving (yes) [16]

19 (16.2, 9.5–23.0)

–

Caregiver burden

Mean (SD)

 

 Objective (duration of daily care in hours) [12]

2.0 (3.5)

–

 Subjective (ZBI-S, range 0–48) [5]

7.4 (7.2)

–

  1. Abbreviations: CHF Swiss Francs, CI Confidence Interval, QRI Quality of Relationship Inventory, SCI Spinal Cord Injury, SCI-SCS Spinal Cord Injury-Secondary Conditions Scale, SCQ Self-Administered Comorbidity Questionnaire, SD Standard Deviation, UCLA-SF UCLA Loneliness Scale-short form, ZBI-S Zarit Burden Interview-short form