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Table 1 Basic characteristics of the pro-WELL baseline population

From: Social inequalities in the burden of care: a dyadic analysis in the caregiving partners of persons with a physical disability

  Caregiving partners Persons with SCI
Total [Missing values: SCI; partner]
Sociodemographic characteristics
Continuous Mean (SD) Mean (SD)
 Age (in years) 50.7 (10.0) 51.7 (9.4)
 Net-equivalent household income (in CHF) [17;18] 4333 (1560) 4495 (1473)
 Years of formal education [7;2] 14.0 (3.2) 13.8 (3.2)
 Subjective social position (range 0–10) [5;4] 6.0 (1.6) 5.8 (1.8)
 Duration of caregiving (in years) [7] 18.8 (11.0)
Categorical n (%, 95 CI) n (%, 95 CI)
 Female [0;0] 86 (72.9, 64.0–80.2) 36 (27.1, 19.8–35.9)
 Financial strain [5;4] 39 (34.5, 26.2–43.9) 39 (34.5, 26.2–43.9)
 Home ownership [2;7] 79 (66.4, 58.2–74.6) 81 (72.9, 63.8–80.5)
 Paid employment [0;0] 76 (53.3, 44.2–62.3) 63 (64.4, 55.2–72.6)
Lesion characteristics of the care-receiver n (%, 95 CI) n (%, 95 CI)
 Lesion severity [2]
 Incomplete paraplegia 36 (31.0, 23.2–40.1)
 Complete paraplegia 45 (38.8, 30.3–48.1)
 Incomplete tetraplegia 22 (19.0, 12.7–27.3)
 Complete tetraplegia 13 (11.2, 6.6–18.5)
Aetiology [3]
 Traumatic 97 (84.3, 76.4–90.0)
 Non-traumatic 18 (15.7, 10.0–23.6)
Health status Mean (SD) Mean (SD)
 Secondary health conditions (SCI-SCS, range 0–24) [0] 10.8 (5.3)
 Comorbidities (SCQ, range 0–5) [0;0] 0.8 (1.1) 0.9 (1.0)
Psychosocial resources Mean (SD) Mean (SD)
 Quality of relationship (QRI, range 0–24) [3;2] 20.3 (3.6) 21.0 (2.9)
 Loneliness (UCLA-SF, range 0–6) [3;2] 0.7 (1.3) 1.1 (1.5)
 Self-efficacy [3;4] 15.5 (2.4) 15.0 (2.7)
Unfulfilled support needs n (%, 95 CI)  
 Wish for more support in caregiving (yes) [16] 19 (16.2, 9.5–23.0)
Caregiver burden Mean (SD)  
 Objective (duration of daily care in hours) [12] 2.0 (3.5)
 Subjective (ZBI-S, range 0–48) [5] 7.4 (7.2)
  1. Abbreviations: CHF Swiss Francs, CI Confidence Interval, QRI Quality of Relationship Inventory, SCI Spinal Cord Injury, SCI-SCS Spinal Cord Injury-Secondary Conditions Scale, SCQ Self-Administered Comorbidity Questionnaire, SD Standard Deviation, UCLA-SF UCLA Loneliness Scale-short form, ZBI-S Zarit Burden Interview-short form