Table 1 Characteristics of Included Studies
Study | Country | No. Indigenous participants (n) | Participant group(s) | Age range (years) | Methodological framework | Data collection | Analysis e.g. content, framework, thematic, GT | Topic |
|---|---|---|---|---|---|---|---|---|
Anderson et al. 2008* [11] | AU | 146 Aboriginal & Torres Strait Islanders | ESKD pts | (18–65) | Interview study -life story narrative | In depth narrative style face to face interviews | Thematic content analysis | Understanding of their chronic kidney disease and attitudes to treatment |
Bennett et al. 1995 [12] | AU | 11 Aboriginal & Torres Strait Islanders | Transplant recipients | NS | Exploratory qualitative | In-depth interviews | NS | Social and cultural factors in dialysis and transplantation |
Davison & Jhangri 2014 [13] | CA | 21 First Nations | General population | 18+ (Age criteria) | Multiple case study | Semi-structured face to face interviews | Critical realism | Attitudes toward organ transplant and donation |
Devitt et al.* 2017 [14] | AU | 146 Aboriginal & Torres Strait Islanders | ESKD pts | 18–65 | Interview study -life story narrative | Narrative style face to face interviews. | Thematic | Views of transplant and organ donation |
Fahrenwald & Stabnow 2005 [15] | US | 21 Oglala Lakota Sioux | General population | 21–82 | Ethnographic Social-ecological | In-depth Interviews | Thematic | Sociocultural patterns influencing decisions about organ and tissue donation |
Jones & Cornwall** 2018 [16] | NZ | 9 Māori | ESRD pts | Mean 49.8 (Total Qualitative Sample) | Qualitative descriptive | Face to face semi-structured interviews | Thematic | Factor influencing decision-making among ESRD pts. considering approaching family or friends for a kidney |
Jones** 2017 [17] | NZ | 9 Māori | ESRD pts | 23–68 Mean 49.8 (Total Qualitative Sample) | Qualitative descriptive | Face to face semi-structured interviews | Inductive thematic | Factor influencing decision-making among ESRD pts. considering approaching family or friends for a kidney |
Keddis 2019 [18] | US | 12 Native American | ESKD presenting for kidney transplant evaluation | Mean 50.1 (+/−8.65) | Exploratory qualitative | Semi structured interviews | Grounded theory & inductive thematic analysis | Perceptions & attitudes about kidney transplant |
Martin 2013 [19] | NZ | 4 Māori | ESRF waitlisted for kidney transplant | 19–77 (Total Qualitative Sample) | Pragmatic mixed methods -including qualitative interviews | Semi structured face to face interviews | A priori and inductive thematic analysis | Barriers to live donor kidney transplant |
Smith 2015 [20] | CA | 1 First Nations | Donor | NS | Autoethnography | Journal records | NS Narrative | Lived experience of kidney donation |