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Table 1 Summary of the barriers, interventions and reasonable adjustments of the project

From: Providing equity of care for patients with intellectual and developmental disabilities in Western Switzerland: a descriptive intervention in a University Hospital

Barriers & Working group

Before the interventions

Interventions & Reasonable adjustments

After the interventions

1. Reduce quality of care and poor healthcare coordination

Patient care path

Long waiting time in the ES

Inadequate care

Sent home without proper care

No information on medical care

No coordination of the patient care path

Transfer home or in supported residential accommodation without coordination or warning, sometimes during the night.

A simplified emergency admission procedure

A disability admission sheet

A central phone number for ES admissions

Shorter waiting time in ES

60% ID-physician position

100% ID nurse case manager

Close collaboration with the “Pain Network”

Creation of the ID outpatient clinic once a week

The disability admission sheet is used throughout the HUG and by families and every supported residential accommodation in Geneva. It is available on the internet.

The central phone number has been given to families and supported residential accommodations and is used very adequately by all partners.

The ID-physician position is made permanent

The nurse case manager plays a key role in facilitating the communication, counselling and organising the hospital stay.

No transfer of patient without warning or during the night

An average of four specific consultations for PWID each week take place.

2.Poor communication and information transmission

Communication

ID-Patient and families or carers not listened to by HCP

No information on medical care

Transfer home or in supported residential accommodation without coordination or warning, sometimes during the night.

Dedicated Internet webpage

Video on the project

Easy to read and understand accessible information on medical procedures

A phone call to families and carers before transfer

No transfer of patient without warning or during the night.

Webpage is user’s friendly and continuously improved and up-to dated

The ID admission sheet is used throughout the Hospital and in all the supported residential accommodations as well as to families

3.Lack of training of healthcare professionals

Human resources

HCP not aware of the specific needs of ID patient

They do not know how to care for nonverbal patient with challenging behaviour.

A flash training of fifteen minutes for doctors, chief and senior nurses

A two-hour session for emergency-HCP and professionals in sensitive departments

A five-day training program for HCP and hospital staff

Specific training program for student nurses

Training of more than 150 HCP in 2017

Participation and professionalization of PWID as co-trainer

Training is greatly appreciated by participants

Training of HCP remains a challenge due to lack of time and needs to be developed.

4.Inaccessibility

Accessibility

Some buildings of the hospital are not accessible to wheel chairs

Lack of rails and revolving doors not accessible to large electric wheelchairs. Insufficient parking spaces for large vehicles for PWID

Assessment on the accessibility to all buildings

Eight new dedicated parking spots

Replacement of the revolving doors of the main entrance of the hospital

Several access ramps, handrails and doors added

Some revolving doors from the new hospital building need to be changed as well.

The signalisation of the outpatient clinic is still unsatisfactory and needs to be improved

New parking spaces should be provided for the outpatient clinic in 2019