Health status
|
Health status not excellent/very good
|
38 %
|
Worry about child’s health more than other people
|
83 %
|
Have emotional worry or concern about child’s physical health
|
75 %
|
Special healthcare need
|
Any special healthcare need
|
66 %
|
Eczema
|
28 %
|
Respiratory allergy
|
18 %
|
Asthma
|
15 %
|
Behavior problem
|
13 %
|
Bone or joint problem
|
12 %
|
More than three ear infections
|
7 %
|
Allergy
|
7 %
|
ADHD
|
7 %
|
Speech problem
|
7 %
|
Depression
|
6 %
|
Headache
|
6 %
|
Anxiety
|
5 %
|
Hearing problem
|
2 %
|
Autism
|
1 %
|
Brain injury
|
1 %
|
Diabetes
|
0.4 %
|
Any other health problem
|
27 %
|
Access to healthcare
|
Child has no PCP
|
64 %
|
Child has no usual source of preventive care
|
40 %
|
Sources of preventive care and sick care different
|
55 %
|
Never/sometimes gets immediate care from PCP
|
10 %
|
Usual source of care has no night or weekend office hours
|
88 %
|
Does not have access to 24-hour telephone coverage for sick care
|
88 %
|
No access to same-day sick-care visit without appointment
|
67 %
|
Child has no usual source of sick care
|
18 %
|
Difficult getting appointment for sick care
|
12 %
|
Never/sometimes has access to interpreterb
|
11 %
|
Has problems getting care from specialists
|
8 %
|
Has problem getting special servicesc
|
8 %
|
Never/sometimes can obtain after-hours telephone help or advice
|
6 %
|
Unmet healthcare needs
|
Delayed or didn’t get needed healthcare
|
73 %
|
Didn’t receive all needed dental care
|
61 %
|
Didn’t receive all needed preventive care
|
51 %
|
Didn’t receive all needed hearing aids or hearing care
|
100 %
|
Didn’t receive all needed physical, occupational, or speech therapy
|
79 %
|
Didn’t receive all needed mental healthcare
|
70 %
|
Didn’t receive all needed mobility aids or devicesd
|
67 %
|
Didn’t receive all needed specialty care
|
57 %
|
Problems obtaining needed specialty referral
|
53 %
|
Didn’t receive all needed home healthcare
|
50 %
|
Didn’t receive all needed vision care
|
46 %
|
Didn’t receive all needed medical supplies or equipmente
|
23 %
|
Didn’t receive all needed acute care
|
19 %
|
Didn’t receive all needed prescription medications
|
18 %
|
Use and out-of-pocket cost of health services
| |
Mean number of any doctor visits in past year
|
3.3
|
Mean out-of-pocket cost per doctor visitf
|
$141.7
|
Mean number of preventive care visits in past year
|
1.0
|
Mean out-of-pocket cost per preventive-care visitg
|
$46.7
|
Mean number of sick visits in past year
|
1.8
|
Mean out-of-pocket cost per sick visith
|
$195.1
|
Mean number of ED visits in past year
|
0.9
|
Mean out-of-pocket cost per ED visiti
|
$421.0
|
Mean number of hospital stays in past year
|
0.1
|
Mean out-of-pocket cost per hospital stayj
|
$593.1
|
Parental-reported financial burden of child’s healthcare
| |
Need additional income to cover child’s medical expenses
|
45 %
|
Child’s health caused financial problems for family
|
35 %
|
Family cut down on work hours to obtain healthcare for child
|
23 %
|
Stopped working because of child’s health
|
10 %
|
Missed school and work days due to child’s health
| |
Mean missed school days due to child’s illness
|
3.4
|
Mean missed work days due to child’s illness
|
1.7
|
Mean wage loss due to missed work days for child’s illnessk
|
$342.9
|
Other mean costs related to taking care of sick childk
|
$155.5
|
Quality of carel
| |
Mean rating of child’s well-child visits
|
8.3
|
Mean rating of quality of child’s primary-care provider
|
8.9
|
Mean rating of quality of child’s acute care
|
8.6
|
Mean rating of quality of child’s specialty provider
|
8.3
|
Parental satisfaction with child’s pediatric care
|
Doctor never/sometimes asks how you are feeling as parent
|
40 %
|
Doctor never/sometimes understands how your prefer to raise child
|
27 %
|
Doctor never/sometimes take time to understand child’s specific needs
|
21 %
|
Doctor never/sometimes respect you are expert on your child
|
16 %
|
Did not ask all questions I wanted to ask doctor
|
15 %
|
Doctor didn’t spend enough time with child
|
14 %
|
Would not recommend child’s healthcare provider to friends
|
24 %
|
Quality of life (mean PedsQL score)
|
Total
|
91
|
Physical functioning
|
93
|
Social functioning
|
92
|
Emotional functioning
|
86
|
School functioning
|
85
|