Measure | Proportion, Mean, or Mean Cost |
---|---|
Health status | |
 Health status not excellent/very good | 38 % |
 Worry about child’s health more than other people | 83 % |
 Have emotional worry or concern about child’s physical health | 75 % |
Special healthcare need | |
 Any special healthcare need | 66 % |
 Eczema | 28 % |
 Respiratory allergy | 18 % |
 Asthma | 15 % |
 Behavior problem | 13 % |
 Bone or joint problem | 12 % |
 More than three ear infections | 7 % |
 Allergy | 7 % |
 ADHD | 7 % |
 Speech problem | 7 % |
 Depression | 6 % |
 Headache | 6 % |
 Anxiety | 5 % |
 Hearing problem | 2 % |
 Autism | 1 % |
 Brain injury | 1 % |
 Diabetes | 0.4 % |
 Any other health problem | 27 % |
Access to healthcare | |
 Child has no PCP | 64 % |
 Child has no usual source of preventive care | 40 % |
 Sources of preventive care and sick care different | 55 % |
 Never/sometimes gets immediate care from PCP | 10 % |
 Usual source of care has no night or weekend office hours | 88 % |
 Does not have access to 24-hour telephone coverage for sick care | 88 % |
 No access to same-day sick-care visit without appointment | 67 % |
 Child has no usual source of sick care | 18 % |
 Difficult getting appointment for sick care | 12 % |
 Never/sometimes has access to interpreterb | 11 % |
 Has problems getting care from specialists | 8 % |
 Has problem getting special servicesc | 8 % |
 Never/sometimes can obtain after-hours telephone help or advice | 6 % |
Unmet healthcare needs | |
 Delayed or didn’t get needed healthcare | 73 % |
 Didn’t receive all needed dental care | 61 % |
 Didn’t receive all needed preventive care | 51 % |
 Didn’t receive all needed hearing aids or hearing care | 100 % |
 Didn’t receive all needed physical, occupational, or speech therapy | 79 % |
 Didn’t receive all needed mental healthcare | 70 % |
 Didn’t receive all needed mobility aids or devicesd | 67 % |
 Didn’t receive all needed specialty care | 57 % |
 Problems obtaining needed specialty referral | 53 % |
 Didn’t receive all needed home healthcare | 50 % |
 Didn’t receive all needed vision care | 46 % |
 Didn’t receive all needed medical supplies or equipmente | 23 % |
 Didn’t receive all needed acute care | 19 % |
 Didn’t receive all needed prescription medications | 18 % |
Use and out-of-pocket cost of health services | Â |
 Mean number of any doctor visits in past year | 3.3 |
 Mean out-of-pocket cost per doctor visitf | $141.7 |
 Mean number of preventive care visits in past year | 1.0 |
 Mean out-of-pocket cost per preventive-care visitg | $46.7 |
 Mean number of sick visits in past year | 1.8 |
 Mean out-of-pocket cost per sick visith | $195.1 |
 Mean number of ED visits in past year | 0.9 |
 Mean out-of-pocket cost per ED visiti | $421.0 |
 Mean number of hospital stays in past year | 0.1 |
 Mean out-of-pocket cost per hospital stayj | $593.1 |
Parental-reported financial burden of child’s healthcare |  |
 Need additional income to cover child’s medical expenses | 45 % |
 Child’s health caused financial problems for family | 35 % |
 Family cut down on work hours to obtain healthcare for child | 23 % |
 Stopped working because of child’s health | 10 % |
Missed school and work days due to child’s health |  |
 Mean missed school days due to child’s illness | 3.4 |
 Mean missed work days due to child’s illness | 1.7 |
 Mean wage loss due to missed work days for child’s illnessk | $342.9 |
 Other mean costs related to taking care of sick childk | $155.5 |
Quality of carel | Â |
 Mean rating of child’s well-child visits | 8.3 |
 Mean rating of quality of child’s primary-care provider | 8.9 |
 Mean rating of quality of child’s acute care | 8.6 |
 Mean rating of quality of child’s specialty provider | 8.3 |
Parental satisfaction with child’s pediatric care | |
 Doctor never/sometimes asks how you are feeling as parent | 40 % |
 Doctor never/sometimes understands how your prefer to raise child | 27 % |
 Doctor never/sometimes take time to understand child’s specific needs | 21 % |
 Doctor never/sometimes respect you are expert on your child | 16 % |
 Did not ask all questions I wanted to ask doctor | 15 % |
 Doctor didn’t spend enough time with child | 14 % |
 Would not recommend child’s healthcare provider to friends | 24 % |
Quality of life (mean PedsQL score) | |
 Total | 91 |
 Physical functioning | 93 |
 Social functioning | 92 |
 Emotional functioning | 86 |
 School functioning | 85 |