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Table 1 Sample questions

From: Investigating people’s attitudes towards participating in longitudinal health research: an intersectionality-informed perspective

Theme

Sample question(s)

Follow-up questions

Opening question

Could you please tell me a bit more about what made you participate in the study (or not), and what kind of experiences you have made so far?

 

Decision-making process and experiences with the study

Could you please describe the situation in which you received the invitation letter?

Did you discuss your decision (not) to participate with anyone?

Which expectations did you have vis-à-vis the study?

Have your expectations been met? Why (not)?

How would you describe your overall experiences with the study?

Is there anything you remember particularly well?

Are you planning on remaining in the study? Why (not)? Would you participate in a different study?

Why (not)?

Why (not)?

Why was that?

Experiences with the healthcare system

How would you describe your overall experiences with the healthcare system, for example when visiting your doctor?

 

Experiences of marginalisation and/or privilege

Have there been situations in your life, for example in school or on the labour market, where you felt you had been socially disadvantaged, excluded or even discriminated against?

Have you had similar experiences when interacting with the healthcare system?

Have there been situations in your life, for example in school or on the labour market, where you felt you had been in a privileged position compared to others?

Have you had similar experiences when interacting with the healthcare system?

Social inclusion and involvement

Are you involved in any social, political or charitable organisations?

Would you like to be involved? How?