From: Developing a tool for the measurement of social exclusion in healthcare settings
Question / Element | Feedback | Change & Rationale |
---|---|---|
Consent & Participant Information Leaflet | Terms like ‘data’ and ‘explicit consent’ may intimidate or make participants nervous about taking part | No modification was made to these as they were required to be included as per ethical approval, but researcher more conscious of need to explain these terms to participants where required |
Throughout | Researcher needed to show more awareness of emotional impact of questions, and signposting areas that might be difficult | Challenging questions, and cumulative ‘burden’ of asking a series of questions to each participant on potentially very difficult parts of their life |
Throughout | Mention that the support of gatekeepers is available if this research has brought on any distress | New lines added at very end; ‘Thank you for taking part in this research. If the questions have upset you or brought up any issues you would like to discuss please let me know and I will speak to the gatekeeper at this service.’ |
LGBTQ + status | What does LGBTQ + mean? – may have to explain this | Use full term, not abbreviation, when asking the question |
Challenges faced | The word ‘begged’ can be upsetting or offensive | Question changed to ‘have you ever asked people on the street for money?’ |
Money | Be mindful of possibility that people may be earning from non-conventional sources e.g. sex work, and may be embarrassed about that | New awareness of this when asking particular question |