Skip to main content

Table 2 Changes based on pre-testing

From: Developing a tool for the measurement of social exclusion in healthcare settings

Question / Element

Feedback

Change & Rationale

Consent & Participant Information

Leaflet

Terms like ‘data’ and ‘explicit consent’ may intimidate or make participants nervous about taking part

No modification was made to these as they were required to be included as per ethical approval, but researcher more conscious of need to explain these terms to participants where required

Throughout

Researcher needed to show more awareness of emotional impact of questions, and signposting areas that might be difficult

Challenging questions, and cumulative ‘burden’ of asking a series of questions to each participant on potentially very difficult parts of their life

Throughout

Mention that the support of gatekeepers is available if this research has brought on any distress

New lines added at very end; ‘Thank you for taking part in this research. If the questions have upset you or brought up any issues you would like to discuss please let me know and I will speak to the gatekeeper at this service.’

LGBTQ + status

What does LGBTQ + mean? – may have to explain this

Use full term, not abbreviation, when asking the question

Challenges faced

The word ‘begged’ can be upsetting or offensive

Question changed to ‘have you ever asked people on the street for money?’

Money

Be mindful of possibility that people may be earning from non-conventional sources e.g. sex work, and may be embarrassed about that

New awareness of this when asking particular question