Table 2 Characteristics of included articles, ordered chronologically. Region/country, name of registry, Indigenous populations(s), CONSIDER domain(s) identified for reporting of research involving Indigenous peoples, whether or not the study included / identified/ discussed barriers and/or strategies to ascertainment, and/or strategies supporting data quality are indicated
From: Indigenous health equity in health register ascertainment and data quality: a narrative review
Author, year | Region/ country | Name of registry | Indigenous Population(s) | CONSIDER domain(s) | Ascertainment | Data quality strategies | |
|---|---|---|---|---|---|---|---|
Barriers | Strategies | ||||||
Lieb et al., 1992 [24] | Los Angeles, USA | Los Angeles County AIDS Surveillance Registry | Indigenous American and Indigenous Alaskan | Prioritization, relationships | Yes | Yes | |
Wiggins 1996 [25] | USA | Cancer registries (non-specific) | Indigenous American | Prioritization | Yes | ||
Dannenbaum et al., 1999 [26] | James Bay, Canada | Cree Board of Health and Social Services of James Bay Diabetes Registry | Cree of Eeyou Istchee | Prioritization, relationships | Yes | Yes | |
Becker et al., 2002 [27] | Portland Area, USA | Oregon State Cancer Registry, the Washington State Cancer Registry, and the Cancer Data Registry of Idaho | Indigenous American and Indigenous Alaskan | Not identified | Yes | Yes | |
Espey et al., 2008 [28] | USA | 49 state cancer registries | Indigenous American and Indigenous Alaskan | Prioritization | Yes | Yes | |
Perdue et al., 2008 [29] | Indian Health Service regions (Alaska, Pacific Coast, Northern Plains, Southern Plains, Southwest, and East), USA | National Program of Cancer Registries | Indigenous American and Indigenous Alaskan | Prioritization | Yes | Yes | |
Shaw et al., 2009 [30] | New Zealand | Cancer Registry | Māori | Prioritization | Yes | Yes | |
Johnson et al., 2009 [31] | Detroit, USA | National Program of Cancer Registries | Indigenous American and Indigenous Alaskan | Prioritization, relationships, participation | Yes | Yes | |
Hoopes et al., 2010 [32] | Washington State, USA | Northwest Tribal Registry, Washington State Cancer Registry | Indigenous American and Indigenous Alaskan | Governance, prioritization, relationships, participation | Yes | Yes | |
Zhang et al., 2011 [33] | Australia | Eight Australian cancer registries | Indigenous Australians | Prioritization | Yes | Yes | |
Hoopes et al., 2012 [34] | Portland IHS administrative area (Idaho, Oregon, and Washington), USA | Idaho, Oregon, Washington Cancer Registries | Indigenous American and Indigenous Alaskan | Governance, prioritization, relationships, participation | Yes | Yes | |
Creswell et al., 2013 [35] | Wisconsin, USA | State cancer registry | Indigenous American and Indigenous Alaskan | Governance, prioritization, relationships | Yes | Yes | Yes |
Page et al., 2017 [36] | New Zealand | Australia and New Zealand Dialysis and Transplant Registry | Māori | Prioritization, relationships | Yes | Yes | |
Boden-Albala et al., 2017 [37] | Alaska | Alaska Native Stroke Registry | Indigenous Alaskan | Governance, prioritization, relationships | Yes | Yes | |
Scott et al., 2018 [38] | New Zealand | Waikato Trauma Registry | Māori | Prioritization, relationships | Yes | Yes | |
Layne et al., 2019 [39] | USA | State cancer registries | Indigenous American and Indigenous Alaskan | Prioritization | Yes | Yes | |
Diaz et al., 2020 [23] | Global | International Association for Cancer Registries | Global Indigenous populations | Prioritization | Yes | Yes | Yes |