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Table 1 Description of selected comparators

From: Measuring health care experiences that matter to Indigenous people in Australia with cancer: identifying critical gaps in existing tools

Comparator Provenance Characteristics Rationale for inclusion
Indicator sets
A
National Cancer Control Indicators Framework, Patient experience (no date) [36]
Cancer Australia.
Part of National Cancer Control Indicators (NCCI) (Psychosocial care).
Eight patient experience indicators, agreed measures, questions.
Derived from National Health Service (NHS) England Cancer Patient Experience Survey (CPES).
Consultative process which attempted to establish indicators for national data collection and comparison over time. Consistent with PCC Recommendation 2: ‘A core set of nationally endorsed patient survey questions … to facilitate collation and comparison of … data in key healthcare settings’ [3] (p2).
B
Prioritised cancer patient experience indicators (2017) [7]
Funded by Cancer Institute of New South Wales (NSW).
Centre for Health Service Development, Australian Health Services Research Institute (AHSRI), University of Wollongong.
Prioritised list of 20 patient experience indicators. Aimed to guide service improvement. Delphi study to identify and prioritise cancer patient experience indicators. Widely consultative work covering continuum of cancer care in general population. Ranked indicators according to their importance in cancer care. High level of consensus.
Surveys
C
Adult Admitted Patients Survey (2014, NSW) [37]
Bureau of Health Information (BHI). Service-oriented survey: Hospital setting.
Population: Adult inpatients.
Purpose: Healthcare system performance, inform improvement actions, strengthen accountability [38].
Length: 106 questions from multiple sources.
Mode: self-administered, mailed [39].
BHI used this standard adult inpatient survey to oversample Aboriginal people (n = 2682) who were NSW hospital inpatients in 2014. Differences between inpatient experiences of Aboriginal and non-Aboriginal people were reported [11]. Changes made to subsequent surveys.
D
Victorian Cancer Patient Experience Survey (2017) [40]
Department of Health and Human Services (Victoria). Pathway-oriented survey in modules.
Population: adult cancer patients.
Purpose: Quality improvement, compare care experiences, state or treatment centre level.
Length: 10 modules; > 140 questions.
Mode: self-administered, mailed [41].
Covers trajectory of cancer pathway. Developed as other tools were rejected; greater relevance.
  1. Abbreviations: NSW New South Wales, PCC Person-centred care, BHI Bureau of Health Information