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Table 7 Summary of Community Engagement Recommendations from Scoping Review Main Findings and Themes

From: What do you mean by engagement? – evaluating the use of community engagement in the design and implementation of chronic disease-based interventions for Indigenous populations – scoping review

Recommendation Description of Community Engagement Activities
Initiation of Partnership • Initiate partnership with Indigenous population through continuous process of trust building and open discussions regarding intentions
• Discuss community priorities and potential study to assist with raised issue
• Allow community to determine study goals, but researcher should be allowed to probe conversation as necessary (i.e. facilitation not identification)
• Researcher should provide details to community regarding various modes of community engagement that can be included to allow community to approve the appropriate methods or suggest alternatives. This includes but is not limited to the following methods:
1) Include community member to oversee or lead conduct of study with researchers
2) Include community member to conduct interviews and/or recruit participants
3) Include community member to conduct data analysis in either English or various Indigenous languages
4) Utilize yarning or sharing circle style interviews (i.e. storytelling)
5) Create reports on study progress to distribute to community
Study Approval • Following finalization of study methods, obtain final study approval to ensure any overlooked or new issues have not been accounted for
Adaptation of Intervention • Obtain community feedback both before and after intervention changes to ensure feedback has been appropriately interpreted and accommodated for (i.e. pre and post)
• Researchers should evaluate whether inclusion of mobile phone would be beneficial with respect to the outlined intervention goal (i.e. improved access to care, visual aids, motivational messaging)