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Table 5 Level of Community Engagement Used in Each Phase of Research Process

From: What do you mean by engagement? – evaluating the use of community engagement in the design and implementation of chronic disease-based interventions for Indigenous populations – scoping review

Study Component Example Study Activity Articles
n (%)
Initiation of Partnership • Researchers from University of Canterbury invited by Māori Peoples in New Zealand to discuss partnership and potential study goals and priorities [26] 7 (30)
Research Approval • Australian research group met with mayor and council of remote Aboriginal community to obtain local letter of support to conduct study [19] 11 (47)
Research Question, Study Aims • Community members and Elders involved in discussion that determined study goals [32] 6 (26)
• Community members and Elders identified and determined study goals [27] 1 (4)
Design, Methods, Approach • Community advisory board was created to give researchers guidance on the research design to ensure cultural relevance was maintained and cultural protocols were observed [26] 2 (9)
Protocols • Local research assistant hired to co-develop surveys and interview guides with research team [18] 2 (9)
Data Collection • Members of Indigenous community involves in both recruitment and moderation focus groups and took notes [34] 3 (13)
Data Analysis • Community members involved throughout data analysis process by coding and reviewing themes [23] 5 (22)
Intervention • Stakeholder group composed of Aboriginal workers, HF patients, researchers and clinicians reviewed electronic resource, then changes were made according to feedback (i.e. appropriate skin tone/voice, plain language) [22] 11 (47)
Dissemination • Created formative evaluative process where two external evaluators monitor study and prepare reports on progress to distribute to village [18] 3 (13)
Sustainability • Used community leadership to develop local capacity to sustain program [28] 6 (26)