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Table 1 Summary description of national data sources

From: Realizing the right to health in Brazil’s Unified Health System through the lens of breast and cervical cancer

  Description Comments
National information systems for cervical and breast cancer (SISCOLO/SISMAMA) Information systems for cervical and breast cancer until 2012, when they started to be integrated in new cancer information system (SISCAN). The information system is fed by public providers, private providers contracted by the SUS, states and municipalities. The system captures data on the results of mammography, Pap smear exams and pathological exams of the breast and uterus (biopsy and surgical specimen). The system suffers from delays in data entry and incomplete data for some variables (with variation across states).
Hospital Cancer Registry (HCR) Fed by hospitals and provides the basis for financial transfers to providers. Captures advanced diagnostics procedures, surgery and other treatment procedures that are administered at the hospital level. Given the link with financial transfers, data tends to be more complete. Incentives for over-reporting exist but are mitigated by control and auditing systems.
Outpatient Information System (SIA) Covers all procedures provided outside hospitals. Data entered by providers. Provides the basis for financial transfers to providers. Includes data on all outpatient procedures. Given the link with financial transfers, data tends to be more complete. Incentives for over-reporting exist but are mitigated by control and auditing systems.
National Household Sample Survey (PNAD) Is the national household sample survey conducted by Brazilian Institute of Geography and Statistics since 1981. The study draws on national representative data from the health section. 2008 was the last time the health section of PNAD was conducted. New data, including the health module, was collected in 2018 but is not yet available.
Registry of health facilities (CNES) The system provides infrastructure information, type of care provided, specialized services existing beds and the number of health professionals in health facilities. Although the CNES provides information on infrastructure and HR, it does not contain data on performance.
Parameters of needs The parameters to estimate the needs in the study have been based on official guidelines from MOH described in different ordinances (1101/2002 and others), protocols for screening and treatment and guidelines from INCA. MOH has calculated those parameters based on scientific literature and previous years data.
  1. Source: Authors