Themes | Sub-Themes | PWDs | Caregivers | Rehabilitation Providers | Other stakeholders |
---|---|---|---|---|---|
Meaning of rehabilitation | Inclusive of physical and psychological therapy, sports, and education | Includes therapies and assistive technology | Strategy to promote independence, both in the PWD and their caregivers | A process that “frees” the PWD and their family | |
It is necessary to overcome fear of leaving the house and improve quality of life | Necessary so PWD can do things without help and reduce their care burden | Should be tailored to individual needs with a multidisciplinary/multilevel approach | Beyond health and includes sports, recreation, education, employment, peer mentoring, and services for caregivers | ||
Value of rehabilitation seen through peers who have had a successful outcome | Rehabilitation as a tool for acceptance | A path to independence, to be able to decide on your own | Requires articulation between PWD, their families, and providers | ||
Challenges to access comprehensive rehabilitation services | Barriers for personal mobility | Homes of PWDs are inaccessible | PWDs lack ability to navigate accessibility barriers with assistive technology | PWDs lack ability to navigate physical barriers with assistive technology | |
Built-environment barriers in public places | Public places with lots of stairs, no ramps or elevators | Built-environment barriers in public places | Accessibility challenges in public spaces | ||
Lack of accessible, reliable, and affordable public transportation | Lack of accessible and affordable public transportation | Lack of accessible, reliable, and affordable public transportation | Lack of funding to afford transportation | ||
Perceptions and knowledge about disability | Attend talks, seminars as a tool to learn more about ones condition | Need more training on how to care for PWD and themselves | Many providers lack appropriate training in disability | People that design the city need to be aware of universal design | |
Some professionals, including health and rehabilitation, lack of appropriate knowledge on disability and accessibility | Some rehabilitation providers do not have the training to appropriately work with PWD | Rehabilitation is not seen as inclusive by policy and decision makers | PWD and their families lack interest in learning | ||
Mistrust in medical personnel | Mistrust in medical system | Many PWD and caregivers do not adhere to the programs because lack of interest | PWD need training in rights and self-advocacy | ||
PWD and their families only identify as right-holders and not duty-bearers | Awareness on appropriate assistive technology is needed | ||||
Navigating the system | Services constantly denied requiring legal appeal | Legal appeal required in many instances to access rehabilitation services | Disability is not a priority for policy makers | Legal appeal required to access services | |
Pathways to access services are not clear | Services are insufficient | Lack of continuity in public programs and strategies | Lack of coordination between programs | ||
Pathways to access services are not clear | Lack of public funding for sport, art, and recreation | Non-existent care pathway | |||
Participation in the community | Leisure and recreation participation most mentioned | Leisure and recreation participation most mentioned | Lack of interest and commitment from PWD and their families limit their community participation | Employment necessary to improve the quality of life of PWD and their families | |
Education and employment important to social participation and to raise awareness on disability | Education is key to improve participation | ||||
Sports as tools that teach independence, responsibility, and commitment | |||||
Need for PWDs to take leadership roles |