From: Measuring social exclusion in healthcare settings: a scoping review
Full Name [and associated references] | Name | Social Exclusion (SE) / Social Inclusion (SI) | Target Group | Purpose | Background | No of Items | Scoring | Administration |
---|---|---|---|---|---|---|---|---|
APQ-6 | patients in mental health settings | to foster discussion on recovery between patients in mental health settings and clinicians | developed from concepts of Australian Bureau of Statistics Labour Force Surveys and Census | 6 | measures hours of participation | self-reported, telephone or face to face | ||
Australian Community Participation Questionnaire [42, 43, 65] | ACPQ | general population, patients in mental health settings | to measure community participation in people with mental health issues, including those in rural and remote locations, not for clinical use | developed specifically | 15 (short version), 30 (long version) | Likert scale | self-reported | |
HG | patients in mental health settings | |||||||
CIM / CIQ | patients with traumatic brain injury, patients in mental health settings | to measure belonging and participation in community | based on qualitative research with patients with brain injury | 10 | Likert scale | self-reported | ||
CMSI | SI | patients in mental health settings | to measure social inclusion as an outcome of psychosocial rehabilitation programs | based on aspects of the Socially Valued Role Classification Scale [70] and the Community Integration Questionnaire [67] | 75 | classification table including hours of participation and supports needed | two separate face to face interviews | |
EPQ | SI/SE | patients in mental health settings | to examine changes in SE/SI of mental health service users who took part in educational programme, for use in clinical setting and for research | developed specifically | 10 | qualitative only, answers analysed thematically | self-reported | |
Evaluating Social Inclusion Questionnaire [71] | ESIQ | SI | patients in mental health settings | to evaluate patient’s sense of social inclusion, especially when they move from supported settings out into the community. | focus on service user/patient input into design and reporting of tool | 18 | Likert scale | semi structured interview |
IW | SI | patients in mental health settings | for use in discussion between patient and clinician to foster collaboration and to improve social inclusion | developed specifically | 18 | counting no of activities, people and places engaged with | patient and HCP discussion, visual ‘map’ developed | |
LCQ | SI | patients in mental health settings | to monitor the social inclusion of patients in mental health settings; including vocational and community activity, housing status and access to a GP, for use in clinical setting | developed by the Australian Mental Health Outcomes and Classification Network, based on APQ 6 tool | 33 | Likert scale | self-reported | |
MHRS | SI | patients in mental health settings | to assess patients recovery from mental illness, key workers to map and plan change | based on HOS below, but then academic literature and published mental health h service user accounts also influence | 10 | scale 1–10 for each domain | patient and key worker discussion, visual ‘map’ developed, repeated over time | |
Multidimensional Social Inclusion [36] | MSI | SI | patients in mental health settings | tool to prompt discussion between patients in mental health settings and clinicians on social inclusion | tool developed meant to facilitate discussion in clinical setting, based on theory of Pinfold [77] | 4 | not scored | discussion aid |
HOS | homeless people | to measure change across ten domains of life of homeless person, focus on self-reliance, key workers use to map and plan change | developed by staff and clients of homeless organisations, ‘bottom-up process’ | 10 | scale 1–10 for each domain | patient and key worker discussion, visual ‘map’ developed, repeated over time | ||
Participation Scale [81] | PS | SI | people with disability | to evaluate rehabilitation, social inclusion and stigma reduction programmes, available in seven languages, for research or clinical assessment of progress | based partly on participation domains of International Classification of Functioning, Disability and Health [82] | 13 (short version), 18 (long version) | overall score calculated | interview by staff |
Social and Community Opportunities Profile [41,42,43, 57, 83] | SCOPE | SI | patients in mental health settings, general population | to assess social inclusion using objective and subjective measures | based on review of existing SI measures and literature, concept mapping exercises conducted with different groups incl mental health service users, professionals and general population | 48 (short version), 121 (long version) | Likert scale and other measures | self-reported or interview |
Social and Community Opportunities Profile – Chinese Version [44, 84,85,86,87] | SCOPE-C | SI | patients in mental health settings, people who are migrants | to assess social inclusion with objective and subjective factors with people in cultural context | Chinese version of SCOPE, modified based on local research and translated for use in Hong Kong | 56 | Likert scale and other measures | self-reported |
SIQ | SI | patients in mental health settings | to estimate the level of social inclusion of patients in mental health settings attending a day hospital service, for use in clinical setting | looked at existing measures and then developed own over repeated engagement with service users and staff | 23 | Likert scale and traffic light system from Bates 2002 to report level of SI | self-reported | |
SInQUE | SI | patients in mental health settings | to assess the extent to which people with severe mental illness are socially included; looking back at time prior to hospital admission, and at current situation | based on the Poverty and Social Exclusion Survey [89] with added questions on political engagement | 97 | score given for each domain, then total score calculated; higher score means greater SI | structured interview | |
Social Inclusion Scale / Social Inclusion Measure [42, 43, 57, 69, 90,91,92] | SIS / SIM | SI | patients in mental health settings | to assess how participation in arts programmes affects social inclusion | created specifically, but based on literature reviews, website searches, contacting experts and UK National Labour Force Survey questions | 22 | Likert scale | self-reported |
SIS | patients in mental health settings | to measure social functioning for patients with schizophrenia from patient and informant perspective | based on literature, expert advice and patient feedback | 62 | self-reported | |||
SSSI | SI | patients in mental health settings | for mental health staff to estimate social inclusion of patients using traffic light system, for use in clinical setting | developed specifically, but based on Bates and Butlers ‘Life Domains’ [95] | 10 | staff report time patient has spent on activity over one week | staff complete the measure | |
Support Needs Questionnaire [96] | SNQ | SI | patients in mental health settings | to measure social inclusion and recovery of people with significant mental health problems, for use in clinical setting | derived from Social Role Valorisation theory [97], developed in conjunction with patients | 8 | Likert scale | face to face |
VAT | homeless people | used to measure homeless persons vulnerability and needs in order to allocate services | developed by staff in homeless services to assess need and allocate resources | 10 | scale 1–5 for each domain, overall score calculated | person and key worker |