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CFS/ME
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Human and disability needs and rights
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Needs-based care
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Social inclusion and health and social equity
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Understanding of needs of people with CFS/ME
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Acceptance
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Illness recognition
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Proactive attitudes
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↑ Supporting
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Values and practices
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Support needs for equity in health and social care
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User power and control
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Needs-based choice
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Inclusive
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Non-stereotyping
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Policies and systems
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Responsive and flexible
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Integrated and coordinated
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Health and social services
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Supportive
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Personalised
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Mutually respectful
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Timely
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Continuous
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Quality of life
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Social inclusion
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Wellbeing optimised
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Purposeful living sustained
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Illness managed
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Social support
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↓
Undermined
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Illness/disease status not recognised or legitimised
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Risk factors for increased inequity in CFS/ME experience
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Limited psychological/physical explanation for illness
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Age and gender stereotypes
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Ethnicity (soc exclusion, cultural boundaries, services access, stereotypes)
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Health and social benefits knowledge, accessibility, entitlement
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Citizenship (postcode lottery, national insurance entititlement)
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