Priority policies and strategies from experiences of CFS/ME | Public and professional relevant knowledge |
---|---|
 | CFS/ME |
 | Human and disability needs and rights |
 | Needs-based care |
 | Social inclusion and health and social equity |
 | Understanding of needs of people with CFS/ME |
 | Acceptance |
 | Illness recognition |
 | Proactive attitudes |
 | ↑ Supporting |
 | Values and practices |
Support needs for equity in health and social care | User power and control |
 | Needs-based choice |
 | Inclusive |
 | Non-stereotyping |
 | Policies and systems |
 | Responsive and flexible |
 | Integrated and coordinated |
 | Health and social services |
 | Supportive |
 | Personalised |
 | Mutually respectful |
 | Timely |
 | Continuous |
 | Quality of life |
 | Social inclusion |
 | Wellbeing optimised |
 | Purposeful living sustained |
 | Illness managed |
 | Social support |
 | ↓ Undermined |
 | Illness/disease status not recognised or legitimised |
Risk factors for increased inequity in CFS/ME experience | Limited psychological/physical explanation for illness |
 | Age and gender stereotypes |
 | Ethnicity (soc exclusion, cultural boundaries, services access, stereotypes) |
 | Health and social benefits knowledge, accessibility, entitlement |
 | Citizenship (postcode lottery, national insurance entititlement) |