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Table 2 Support needs and priority strategies for equity in health and social care, and risk factors for increased inequity from participants' experiences of living with CFS/ME

From: Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis

Priority policies and strategies from experiences of CFS/ME Public and professional relevant knowledge
  CFS/ME
  Human and disability needs and rights
  Needs-based care
  Social inclusion and health and social equity
  Understanding of needs of people with CFS/ME
  Acceptance
  Illness recognition
  Proactive attitudes
 Supporting
  Values and practices
Support needs for equity in health and social care User power and control
  Needs-based choice
  Inclusive
  Non-stereotyping
  Policies and systems
  Responsive and flexible
  Integrated and coordinated
  Health and social services
  Supportive
  Personalised
  Mutually respectful
  Timely
  Continuous
  Quality of life
  Social inclusion
  Wellbeing optimised
  Purposeful living sustained
  Illness managed
  Social support
  Undermined
  Illness/disease status not recognised or legitimised
Risk factors for increased inequity in CFS/ME experience Limited psychological/physical explanation for illness
  Age and gender stereotypes
  Ethnicity (soc exclusion, cultural boundaries, services access, stereotypes)
  Health and social benefits knowledge, accessibility, entitlement
  Citizenship (postcode lottery, national insurance entititlement)
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